I decided to let you have a glimpse into my personal life for a minute.
Spinocerebellar ataxia is one of a group of genetic disorders characterized by slowly progressive incoordination of gait, of hands, of speech, and eye movements.
Frequently, atrophy of the cerebellum occurs, and different ataxias are known to affect different regions within the cerebellum.
The little pink spot there in the picture.
Someone with ataxi will then have a clumsy motion to the body, along with muscle movement etc.
So in other words your Cerebellar starts to shrink you get legions in your brain and down your spine. That affects your ability to function and you are screwed.
This is what my dad has, it is why he is practically in a wheelchair full time. He is losing control of his body. Eventually he won't even be able to swallow. Fun right?
Well he has some of the best Dr.'s in the world helping him up at the University of Utah Hospital.
There is no cure for this disease, but they can hopefully learn from people like dad and find a cure.
Incidentally there are many people who think they have M.S. that do not. They have SCA. Not many Dr.'s know what it is or how to treat it.
Here is where I come in . There is a new Dr. in town one of those that know and research this disease. He wanted to see me because I have Migraines and that can be a symptom that intertwines with SCA
If you have Migraines don't freak unless your dad has SCA. Which I doubt he does.
I went to see Dr. Pulst yesterday. He did all sorts of funny coordination tests on me. Which I passed with flying colors until it got to the walking in circles test. Yes he had me walk in circles. This is something I cannot do. In a very short , let's say by circle 3 I am done for and ready to fall down.
Hmmm. He says " This is not normal." Sheeeesh just when I thought I was going to get out of there thinking I don't have this crummy crap.
He ordered an MRI
I went this morning. Nice little machine isn't it. I especially like the cage they put over your face just before they shove you into that tight hole and tell you not to move. I said "Don't I get some Fava beans and a nice Chianti first?" (thanks Sera, she told me how to spell Chianti) Anyway the tech did not find me amusing.
The MRI wasn't bad and the results are already in....
Tomorrow I will be going in for some balance testing. I went to Dillard's to get me a cute outfit for the occasion
I think these shoes will especially help. From what I understand I will be spinning around on some type of chair. You know, I pay good money to puke while spinning around on the rides at Lagoon. I don't know what good this will do. They will put me on some type of moving platform, which with my cat like reflexes I am not worried.
I don't know if there will be a balance beam or not. I may not do so well on the balance beam especially if I have been spinning around first. I hear after the spinning we will all participate in a mean game of darts.